How long between studies?

By ilovetrk Latest Activity September 3, 2009 at 7:55 pm Views 2,820 Replies 7

ilovetrk

My question is how long should you go between sleep studies? My husband and I are getting varing opinions from different doctors. We both sleep on CPAPs. He also has narcolepsy (or narcosleepy as he calls it) and RLS so he is on meds to stay awake then meds to quiet his legs at night and I think both our CPAP's need to be adjusted but we can't get the docs to agree. Any thoughts would be appreciated.

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Replies (7 replies)

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  • Darsh
    Darsh October 30, 2010 at 5:35 am   

    Do you know how narcolepsy is diagnosed? Well, at my sleep lab, we have to do a study to RULE OUT sleep apnea AND RLS before someone can be diagnosed with narcolepsy… otherwise its the Apnea/RLS that is causing the excessive daytime sleepiness

  • ilovetrk
    ilovetrk October 30, 2010 at 10:01 pm   

    Yes, he has had the studies and tests and has all three diagnosis. Is on CPAP for apnea and meds for RLS and Narcolepsy. As far as I know, I only have apnea.

  • ilovetrk
    ilovetrk October 8, 2009 at 8:56 pm   

    Thank you all for the wonderful advise. Sorry it took so long for me to reply. It has been crazy here and I have just now been able to read your replies. I think it may be time for both hubby and I to have sleep studies. When I get up in the mornings I feel like I should sleep for another 8 or 10 hours (or days) and he is back to talking in his sleep and tired in the morning (but that may be the narcolepsy and RLS). Guess we need to talk to our PCP and see what he thinks.

    Thanks again all.

  • Lamblover
    Lamblover September 24, 2009 at 8:14 am   

    I have been on CPAP for about 10 years now and I love it. Don't even take naps with out it. I have had two regular sleep studies done and one for nacolepsy. That was in CO. High Altitude. Since I have moved to GA I had to change the gage with the dr. advice as I never really thought about it. I was single for about 5 years and didn't know if I was snoring, and I worked in Alaska (which I should have had the altitude part changed for as well). Anyway, my husband now says I am snoring again and am restless at night. I had no idea! LOL I am working with my dr. to determine if I need another sleep study or not.

  • Tracy
    Tracy September 24, 2009 at 12:57 pm   

    Isn't it funny that we have no idea how badly we snort, snore during sleep? My husband used to describe the horrific sounds I made - my son loved to imitate them! How can we not be aware? LOL

    Anyway, if our pressure is adequate we should absulutely NOT be snoring when using CPAP. Its a definate sign that pressure needs to be changed. Sometimes doctors will just order a slight pressure change by phone - other times they may ask you to return to the sleep lab for what is called a Titration. They will have you spend the night sleeping and trying different pressures to find the optimum setting for you. Its very common for us to need pressure changes over the years.

    Good Sleep and STOP THAT SNORING - LOL
    tracy

  • Tracy
    Tracy September 16, 2009 at 8:35 am   

    Hello -
    When someone is diagnosed with sleep apnea, a CPAP machine pressure setting was determined in the sleep lab during the titration segment of your sleep study. This one (CPAP) pressure was your physicians decision based on that night's sleep experience - as the best pressure to resolve your apnea events.

    How often should you return to the sleep lab?
    If your current CPAP pressure is working, you will awaken refreshed. Your old apnea symptoms will be resolved, like snoring. Everything is dandy and so there is no need to return on a scheduled basis

    It is very common for us apnea patients to require machine pressure changes over the months years. Why? It could be as simple as weight gain or loss and as little as 15 pounds.

    It could be that seasonal allergies kicked in AFTER your initial sleep test. Nasal congestion from allergies might mean you need a higher pressure. If your sleep study was in June and CPAP worked well for you, but now in September your hay fever is rearing its ugly head, a pressure increase might resolve. OR adding heated humidification to your CPAP, or turning up the heat setting a little bit might also help.

    Take your sleep apnea condition seriously. You will know when you need to return to the sleep lab for another "look see" when old apnea symptoms reappear.

    Make sure to ask your bed partner to inform you if they notice old symptoms that YOU might not be aware of. Often we don't know WHAT we do in our sleep and so our bedpartner can be very helpful! They'll be the first to notice if you start snoring, gasping, choking etc. They'll know if you become agitated and restless in bed again or if night sweats and bad dreams reawaken!

    Best!
    Tracy

  • Petrea
    Petrea September 13, 2009 at 2:37 am   

    When I was first diagnosed with sleep apnea and narcolepsy I saw my sleep dr. every 2 weeks and had the sleep studies every 3 mos. and then 6 mos. and after a couple of years every year. After I was on a more or less maintenance basis it has been every 2 or 3 years. If there is a concern about needing to adjust the pressure, I would think your dr. would want to go ahead and do another study regardless of when the last one was. I know the studies are quite expensive,but I just have Medicare and they have never had a limit as to how many I can have in how many years like maybe other insurances do, I don't know. Petrea

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